A site to provide updates on Jillian Moore's fight against Stage 4 Neuroblastoma Cancer
Mornings are crazy in this house. Add Jillian and all the nursing duties I have and crazy is an understatement. I have been up since 6 and am now finally able to sit down with my coffee and write an update. Jilli is doing so much better having iv fluids overnight. I am finally going […]
The frustration is beyond words. We left the hospital on Thurs and Jilli is getting worse-not better. She complains of pain, her throat hurts, she is not eating or drinking and she is lethargic. She vomited 3 times yesterday and has had diarrhea since discharge. She went in on Friday but we got no answers. […]
Wanting to let the troops know that our brave girl Jillian is now a big 4 year old. The day started out rough, she was in a lot of pain and not feeling well. Labs and IV fluids at the clinic and some napping in… Now she is much better! She gets to open a […]
Amber Cabrera Moore wrote a new note:Immunotherapy 101. 5 hours ago So many questions are asked about this treatment Jillian is currently going through. I agree with most of you who say, “she is cancer free, why does she need more treatment”? The fact is that Jilli had high risk Neuroblastoma. This cancer has a super […]
The good news is that Jillian is supposed to be released tomorrow from her first round of Immunotherapy. I know many of you are curious as to why Jillian is continuing treatment when she is cancer free. Amber posted the following explanation about this: “So many ask me why Jillian must go through this final […]
Just wanted to give everyone an update on our warrior. About an hour or so after the ch 14.28 antibody was started, Jilli started to feel the side effects. Even on a morphine drip she was in excruciating pain. So much that it had the nursing staff upset. General Dad maintained his composure during this […]
Good morning and happy easter! Last night jilli was moved out of our room and into the PICU as she will need to be monitored very closely while receiving the ch 14.18 antibody. Pre meds are starting now and soon… The antibody. She has already started the GM-CSF injections once a day since being admitted […]
Hello Troops! The beautiful words “cancer free” have been floating in my head for weeks now. But alas the time has come to continue treatment. Neuroblastoma is aggressive and has a high relapse rate. This last phase of treatment, though painful and full of side effects, gives her body a better shot at beating this […]
Not too much to report. Jillian is enjoying being a normal kid as much as we can right now before the last phase of treatment begins. As far as I know, we will begin with a hospitalization at Sunrise in the PICU on April 18th. I will post more info as I know it. I […]
Attention troops!!!!! Our warrior Jillian is CANCER FREEEEE!!!!!! Thank you for all the love and support!!!!! SALUTE!!!!