Hope you had a very wonderful Christmas as we did. Santa brought Jillian her Mercedes-Benz electric car and a Vtech watch that she has been dying for; as well as loads of other toys and games. This year General Dad and his fiancée got Santa duty and the excited Christmas morning joy. So many gifts from so many that love her and Sien; a benefit of having a blended family.
This year we spent New Year’s Eve camping in Dumont sand dunes. Big thank you to my main man Ken for the RV, bonfire, s’mores and the patience! She and big sister Sienna got to learn how to ride quads!
We get to enjoy a few more days of relaxing before school starts back again for all of us. Hope you all had a safe and happy new year! And Cheers for a healthy and prosperous 2018!
Hello troops! Now that I, your commander in chief, have minimal to do in keeping our warrior cancer free…. I had decided to go back to college. Well now, this is a lot more work than I remember from 20 years ago! School has kept me quite busy lately so I apologize for missing out on my Thanksgiving post.
This year, the girls spent Thanksgiving with General dad and his family. Though I missed them, I remain thankful that they have a great dad and two sets of families that love them more than life itself. I am thankful for my wonderful family and Jesse’s too. Family is sooooo important!
I continue to be thankful for YOU, the wonderful army that came together for a little girl that many of you have never met. I am thankful for friends….I have made some great new ones and LOVE my peeps that have been around a while and have stuck by me through all the drama. I am thankful for every day that I can watch the sunset; every day I can kiss my girls. I am thankful for dogs…. without my Roxy girl, I’d be lost. And best of all, I am thankful for love. Without love, what is life? (Quoting my fav band Def Leppard on that one).
I want to share one of Jillian’s homework assignments with everyone. Most of you will “awww” at it, but I laughed myself crying! She is epic, she is funny, she is a character, she is Jillian.
Happy Holidays troops, SALUTE!
Amber, aka CIC momma
A pretty amazing turn of events happened on Monday night. You might remember Krystal and Will from a previous Soldier of the Month post. Krystal is the cancer survivor who was on the billboard with Jillian….
As a survivor, it was expected that Krystal would have complications from her treatment including fertility issues. Couple that with the horrific survival rates of Stage IV neuroblastoma and you will appreciate the below post from Krystal:
“You guys. I fought tears tonight. Never did I think I’d see the day that Jillian would meet a child of my own. So many variables in life could have prevented this. But here we are. Conquering and shit. JILLI, I TOLD YOU, GIRL!! We will prevail. #lifecomplete”
Well put Jaxon’s momma, well put indeed. SALUTE!!
– COPA Aunt Paula
We follow through with our promise to shave Uncle Rob’s head if Zoo Karaoke hit their goal. They surpassed it…. and Jillian did the job! Not only did Rob lose his hair but Howard lost his facial hair he has had since the 70’s. But their loss is a great gain for St. Baldrick’s and children fighting cancer. Way to go guys!!!!!
Hello Troops! Last night’s fundraiser was a SUCCESS! Zoo Karaoke raised $2204 for St. Baldrick’s! I am so happy and grateful to all of you for your generosity. And since that amount greatly surpassed their goal…. Uncle Rob will be getting his head shaved next Wednesday by Jillian herself!!!
Right now , we are sitting at the hospital waiting for scan time. It’s giving me anxiety. All your prayers are welcome for this day to end quickly and her scans to be clear. Thank you all!
Jillian drew this last night. Just thought I would pass this message along to all our troops.
September is almost over. The end of another childhood cancer awareness month is looming near. But before it ends, Jillian’s army is rallying the troops once again. First and foremost I am asking for all your positive energy, prayers and love as we face another and possibly our final round of nuclear scans this Thursday and Friday. If she is still clear, we earn the title of “remission”. So please keep Jillian in your thoughts this week.
Unfortunately there are those out there that just heard the dreaded words “your child has cancer”. It is the most gut wrenching feeling in the world. There are those out there that are still fighting this battle. And there are those out there who are angels; their battles are over and their lives were taken too soon. We are asking you to join Zoo Karaoke in this fight against childhood cancer. This Wednesday night will be a fundraiser benefiting St. Baldricks. Jillian is one of St. Baldrick’s “honored kids” so this Organization means a lot to us. You may click the link below to donate if you are unable to actually make the show in Henderson, Nevada.
Thank you all from the bottom of my heart.
As Childhood Cancer Awareness month starts to wind down, I would like to share with you all that today marks 3 years since we won the battle against stage 4 Neuroblastoma. Jillian does, however have scans coming up next week and of course scanxiety once again rears its ugly head. I am confident that she will remain NED. I believe that this time they will declare her officially in remission. I pray for clear scans and to keep my sanity as scan day looms closer. Next Wednesday, 6:00-10:00 pm at Sunset Downtown in Henderson we will be there for a fundraiser benefiting St Baldricks. Zoo Karaoke will be hosting this awesome event. I hope to see ya there!
It comes as no surprise that Jillian’s Army is still fighting strong against Childhood Cancer. This past weekend, Army soldiers came together to help us get a head start on donations for an upcoming Childhood Cancer karaoke fundraising show to benefit St. Baldrick’s Foundation. This is the third annual show, but the first to support St. Baldrick’s. There are a number of worthwhile Childhood Cancer charities to support making it hard to pick just one. Thank you Gil, Dianna, Sheryl, Krystal and Will for the early donations. The show will be Wednesday, September 27th from 6-10 pm at Sunset Downtown in Henderson, NV.
St. Baldrick’s allowed us to choose “honored kids” to feature on the fundraiser webpage, and we choose Jillian and another neuroblastoma fighter from the Henderson area named Navy. Navy’s mom reached out to Amber while going through the diagnosis process as she remembered her and Jillian from their previous hospital stays. For such a “rare” cancer, this happened quite a few times throughout the years since Jillian was diagnosed.
Unfortunately during recent routine scans, Navy’s family got the news that she has relapsed. We are all so saddened to hear this news and ask that Jillian’s Army send prayers and positive thoughts to Navy and her family.
As always, the fight against Childhood Cancer continues. We need awareness not just during Childhood Cancer Awareness Month in September but all year long. We appreciate you continuing to follow Jillian’s Army and give you our traditional SALUTE!
-COPA Aunt Paula