As Childhood Cancer Awareness month starts to wind down, I would like to share with you all that today marks 3 years since we won the battle against stage 4 Neuroblastoma. Jillian does, however have scans coming up next week and of course scanxiety once again rears its ugly head. I am confident that she will remain NED. I believe that this time they will declare her officially in remission. I pray for clear scans and to keep my sanity as scan day looms closer. Next Wednesday, 6:00-10:00 pm at Sunset Downtown in Henderson we will be there for a fundraiser benefiting St Baldricks. Zoo Karaoke will be hosting this awesome event. I hope to see ya there!
It comes as no surprise that Jillian’s Army is still fighting strong against Childhood Cancer. This past weekend, Army soldiers came together to help us get a head start on donations for an upcoming Childhood Cancer karaoke fundraising show to benefit St. Baldrick’s Foundation. This is the third annual show, but the first to support St. Baldrick’s. There are a number of worthwhile Childhood Cancer charities to support making it hard to pick just one. Thank you Gil, Dianna, Sheryl, Krystal and Will for the early donations. The show will be Wednesday, September 27th from 6-10 pm at Sunset Downtown in Henderson, NV.
St. Baldrick’s allowed us to choose “honored kids” to feature on the fundraiser webpage, and we choose Jillian and another neuroblastoma fighter from the Henderson area named Navy. Navy’s mom reached out to Amber while going through the diagnosis process as she remembered her and Jillian from their previous hospital stays. For such a “rare” cancer, this happened quite a few times throughout the years since Jillian was diagnosed.
Unfortunately during recent routine scans, Navy’s family got the news that she has relapsed. We are all so saddened to hear this news and ask that Jillian’s Army send prayers and positive thoughts to Navy and her family.
As always, the fight against Childhood Cancer continues. We need awareness not just during Childhood Cancer Awareness Month in September but all year long. We appreciate you continuing to follow Jillian’s Army and give you our traditional SALUTE!
-COPA Aunt Paula
Jillian’s Army wants to wish a very Happy Father’s Day to all the dads out there. Jillian is blessed with amazing grandfathers and of course our very own General Dad. Make-A-Wish of Southern Nevada published an amazing article about The Power of a Wish as seen through the eyes of our favorite #WishDad – Jesse Moore. You can read it here: http://snv.wish.org/news-and-events/wish-blog/wish-blog/jesse-moore-on-fathers-day
Summer Greetings Troops!
Another school year has come to an end. Our warrior completed first grade with a certificate for A/B Honor Roll. Yesterday we said a tearful goodbye to her teacher Mrs. Bechtler. We celebrated by going to the movies to see Wonder Woman and then a yummy dinner with her bestie. It was a long and tiring day but a great way to kick off the summer. Have a safe and happy summer everyone!
Just wanted to make sure I wished all of you a happy mother’s day. SALUTE!
Good morning troops! We have had quite a weekend celebrating Jillian’s 7th birthday. Sunday she had a small party at SkyZone with a few of her friends & some family then back to daddy and Lisa’s house for more family playtime. Last night was her actual birthday so we had a dinner party at my house. This year she is into the movie Moana and wanted that for her birthday decor. Of course she got it. LOTS OF IT!
I know I probably say this every post, every event and every milestone; but I take nothing for granted. We should’ve been at a cemetary releasing balloons yesterday instead of grilling hamburgs & brats. I am blessed. I get to rush around town searching for party stuff and decorating 2 cakes last minute… picking wrapping paper up from the floor and cleaning dried frosting stuck to my counters. Mounds of dishes and opened birthday gifts all over my once clean living room. I wouldn’t trade any of that for the world.
Happy 7th birthday my precious JilliBear. Salute!
Troops… Jillian’s MIBG results are in! Our warrior remains NED!!!! Whoohoo!!!
Good morning Troops. Today is day 2 of Jillian’s scans. The C/T and 1st set of MIBG were done yesterday and today we did the second set of MIBG scans. I am pleased to already have the reaults back from the C/T.
Results: Stable with no new evidence for new disease!
Thank God! Now we wait for the results for the MIBG…. positive energy and prayers and good thoughts please!
Good morning troops! Today we welcome the first day of spring.
With spring always comes a sense of renewal…. changes. The weather changes, scenery changes and sometimes life changes. For this family, change seems to be an constant event. I have since gotten used to this creature we call “change”. Change is our new normal in this life. And after all, “Normal” is just a setting on the dryer.
Our warrior has scans coming up this week. As much as I am hopeful and confident that these scans will continue to read NED, the reality of this disease still sits in the back of my mind. I follow the pages of the other children fighting. I read the blogs and I read the comments. I have seen pictures of the ones that have relapsed and the ones that have gained their wings recently. I wish I had a more professional or eloquent way to say it but, this plain just f**king sucks! My thoughts and prayers, strength and energy go out to all of you still fighting this battle. And I hope to have positive news from Jillian’s scans soon.
Until then, we will enjoy the sunshine and the beautiful park days. And I also must wish a very happy birthday to Jillian’s Army COPA (chief of public affairs) and Jilli’s Aunt Paula… Salute!