A site to provide updates on Jillian Moore's fight against Stage 4 Neuroblastoma Cancer
We are so happy to report that our warrior is doing a little bit better each day. Jilli’s stem cells are hard at work fighting off the bit of pneumonia, rhinovirus, diarrhea & mucousitis that has been plaguing her body since neutropenia set in. Her WBC rose to .2 but still no ANC. May not […]
Happy Friday Troops! And by happy, I mean HAPPY! Our warrior is feeling the worst she has ever felt… BUT… This mornings labs show the presence of lymphocytes and monocytes. Her stem cells are grafting and doing their job. No ANC as of yet but her WBC is now at .1! We are headed in […]
I thought we had a lot of crap at the hospital at home! Nothing compares to the UHaul we needed to move from WCC 6 on Monday into the PICU (due to breathing issues from the mucousitis). Well it’s time to leave the PICU and go back to WCC 6 where we belong. Not the […]
Nothing new to report. Jillian is still in PICU and running a fever. Keep praying for her numbers to start rising! Thank you all -COPA Aunt Paula
They said it would get worse… It has. Another day of 0 ANC & a WBC too low to count. This morning became too eventful as she was coughing up so much crap from the mucositis, she was having trouble breathing. Her oxygen sat kept going too low and her temp kept going up. Our […]
Another day down & another step towards the worse. Low grade fever started and they changed her status from a 0 to a 3, meaning her condition got a bit more critical. The rapid response team shows up to start a party in our room at 3 am. Boy do they take this stuff seriously! […]
Our warrior is having a rough day. She has been up and walking some but by the afternoon it is evident that mucositis has set in. Her WBC is below .1 and her ANC is 0. She had to get a platelet transfusion today as her numbers were getting pretty low. We did have to […]
Good morning troops. Jillian is completely finished with all 3 bags of stem cells. The 3rd and final bag was infused at 9:50am… After more vomiting, diarrhea and a good clean sponge bath, our warrior is resting comfortably in her warm blankets. I am hoping I can get her to eat a little bit when […]
Here we are finally at Day 0… As we were walking the halls this morning, one of the nurses said cheerfully,” Happy Birthday Jilli”. Jillian just looked at me like WTF?? Lol. They consider today a “rebirthday” of her new immune system. The stem cells came to her room frozen in liquid nitrogen and thawed […]