A site to provide updates on Jillian Moore's fight against Stage 4 Neuroblastoma Cancer
Quick update on our warrior who spent most of the day in & out of sleep. Nausea & vomiting were the highlight of the day sadly. But they infused her with IVIG (a blood product) and started TPN because she is not eating or drinking. She was super happy to see daddy and sissy today […]
Finally! Jillian is done with chemo FOR GOOD! (Hopefully) The last drops of Etoposide and Carboplatin have gone through the IV pump. Today is day -3 and she is still fighting. Her counts will continue to drop and we will just have to watch her for side effects. Only 2 more days until she receives […]
Today is day -4 and the nurses just hung the last 2 bags of Carboplatin and Etoposide. They will run for the next 24 hrs. This is the last chemo I am praying that she will ever have. Today has been a tough day. Our soldier woke up crying and has been feeling very yucky […]
Today is day -5 and she has gone through 2 of 4 bags of chemo… The nausea is setting in and she is losing her appetite & starting to feel icky. Her levels are dropping daily but still she remains in good spirits (most of the time)… And as expected she is winning over the […]
Jillian and I are all settled in at the Wilmot Cancer Center at Strong Memorial in Rochester, NY. We are in the Blood and Bone Marrow Transplant Suite. We will be here for a minimum of 3 weeks to a month… If all goes well. This is such a nice hospital. Very nice rooms, the […]
A huge THANK YOU to everyone for all the presents, love and support. A very special family gave the girls Spicy Monkey Spirit Hoods…what a fantastic gift- thank you! Today the warrior and I will be heading to NY for the high dose chemo/stem cell transplant. We want to wish you all a very Merry […]
The Moore family have enjoyed 12 days of secret Santa gifts magically appearing at their door. Gifts included cookies, games, books, toys, and much more. Today the Santas revealed themselves to be UNLV cheerleaders and brought a cheerleader Build-A-Bear to both Jillian and Sienna. Gotta love these Rebels With a Cause. UNLV Go Fight Win […]
Attn Troops!!!! We have a major announcement: Dr Andolina (Jilli’s oncologist in NY) just called us and gave us the best news we can expect right now. Although he cannot say “NED” just quite yet, he did say that our Jillian is as close to cancer free as possible right now! Her CT came back […]
We are here at Sunrise Hospital once again. Our warrior is once again NPO for the 2nd MIBG scan and CT scan. Praying that today goes much smoother than yesterday. CIC momma is at her breaking point. Only 5 more days til Christmas and our trip to NY for final chemo/stem cell transplant… And I […]
Here with our warrior Jillian. MIBG Scan #1 today… This test (in conjunction with her bone marrow aspirate she had on Tues) will tell us if there is any cancer left in her body. This is the 2nd of 3 days I have had to withhold food & drink from her…it’s killing me. If this […]