Our last day in the Hospital
This last round of antibodies has been especially tough… Mostly on me. Jilli had tested positive for VRE (vancomycin resistant enterococci) upon this last hospital admission. She has had no side effects and no infection from it. But still they had to keep us in “isolation”. So needless to say, this just made an already uncomfortable situation even worse. Jilli just wants to go home. I don’t blame her one bit. Not only is my head spinning from this supposed contagious bacteria that I guess almost everyone already has colonized in their system, but also from the news of other children fighting for their lives. I wish I never had to enter this cancer life.. I wish no child ever had to endure this. My prayers go out to Prestun… His NB has relapsed after being NED for months. I’m scared for Lilly who’s in the hospital undergoing tests to see if she has yet another cancerous brain tumor- after being cancer free for over 1 year. Is my Jilli going to suffer the same fate? Why is this happening? Why can’t there be a cure? Our lives will never be free from this monster. We will always worry. This is our LAST DAY OF OUR LAST HOSPITAL STAY! Then scans…. We will see if the NB is still gone. I am relieved and scared at the same time. I was already a tough girl. But this past year has made me tougher. Yet I feel like I’m on the edge of a breakdown. I guess we just try to move on the best we can. We enjoy every moment as if it might be our last. One last thought… Adam, you were there for us at St. Rose on our very first night of treatment, and you were here for us on our very last night of treatment at Sunrise? Coincidence? Thank you for being Jilli’s #1 favorite nurse- see you in Disneyworld! Thank you Nikki for taking care of us every night and Brandy for coming in on your day off to get us started early so we can bail asap tonight! You earn gold stars! Much love,
CIC momma
‹ Cycle 5 begins! Troops… We are Home ›
Keep up the good work!! She’s adorable! Such a fighter <3
Stay tough and know that there are so many people there to help you stay strong, even when you don’t feel like there is. I am here at Sunrise with my daughter and I am sending you hugs from the 4th floor. Xo
Thank you!!!!
Your strength is amazing, sweet momma! Sending you all prayers & love. XO’s
Sending you all love and hugs. Be strong and lean on others when you need extra strength …and take one day at a time. Prayers <3
❤️
I love you sis!
❤️❤️❤️
♥♥♥
Aww poor Jillian and you Amber, I feel so sad when I read your words. We say you are strong, but deep down, you are just barely holding it together, but that’s what makes a Mommy. Sometime, you need to get away, go to someone you love and trust and have a good cry, you deserve it and it might help. You and your family are in my daily prayers,
Hugs and prayers..
I can’t even imagine.——So many prayers for you all.
Get well jillian
My prayers are with you all 🙂
Prayers and good thoughts……
Dianna, I don’t think you’re a whiner, never did! Needy either. You’re human. If you need to lean, do it. You and your family have been through a lot.
Her Starbucks family is praying for her always! ❤️
XOXO
Prayers for you and all people that suffer from this terrible disease!
Prayers going her way!
I don’t know how you do it and my tears today are for not just Jillian but for you and Jesse and Sienna. Love you all !!!!!!!!
Stay strong! You are amazingly tough and will have the strength to do everything you need to for Jillian. Jillian and your entire family are in my prayers that she will be made well and that you will all be blessed with, strength and comfort.
Great news. We love Jillian.
I lift you up on the name of Jesus. A healing is coming.
Thinking and Praying for all of you…..
Keeping you all in my thoughts and prayers for continued blessings that you stand in need of at this time.
Hang in there Amber!
Michael and my prayers and thoughts are with you all.
You have all of our love and prayers!!. Big squeezes to Lil princess Jillian! !!
Hang in there! Positive thoughts for the entire family!!
Prayers going up!
Hang in there you have the support and prayers of many people out there that you haven’t met but are still with you in your time of need.