Another Day of war
We made it through our first day of ch14.18 antibody. It went smoothly this time. We found the key to her comfort. Bolus of morphine then bolus of lidocaine BEFORE starting antibody. Then starting the ch14.18 at a slow rate and gradually increasing to full rate. She seemed fairly pain free, no fevers or chills. She fought sleep with everything she had and was a BEAR! Mood swings are back and I am once again her target. Her appetite is diminishing again but at least she still wanted her chocolate milk. So, hoping today goes just as uneventful!!! Lots of prayers, love and white light!!!!
SALUTE!
CIC momma
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Aww Sweet Jillian , Sending love and prayers your way for all of you ….
Love you sissy! Always praying for God to give you and Jilli relief. We love you!
Hang in there mom. Hoping and praying that the time flies by for you. Thinking about you all.
Thank you! Love you all!! Ugh only 3 more hospital stays to go after this one!
God bless and protect this child.
She is such a trooper, your strength is such an inspiration to us all
Prayers going her way!
Aww Jillian, 3 more hang in there, you are an amazing little girl. Prayers for you and your family..I love your hair, it won’t be long, before it is long and beautiful!
Prayers prayers and more prayers
So glad you found the right formula to ease her discomfort and pain. Looking at her picture just breaks my heart. Give her a huge hug for me.
Sending prayers of healing, strength, and comfort.
Praying for this to go quickly, with no side effects and a joyful, happy kid.
Sending prayers,I have faith that she will be a normal happy little girl!!!
I’m very happy to hear she’s doing well…lots of kisses n hugs from us!
Sending prayers of comfort and peace! Love you jilli!
prayers
God bless her!
Prayers for Jilli and momma and family. One day closer to being over. Sending love and hugs
Precious warrior!! Praying for you!!!
Keeping our prayers going! Love and blessings to you all! Love, Aunt Paula’s Aunt Loretta.
Sending lots of prayers
Prayers to Jillian and the family….she will get through this Diana….
I hate that any child has to go through this especially sweet Jilli! I hate cancer 🙁 sending you hugs
Aww
Prayers to you all
Thanks soooo much for the updates!!! Glad the change in meds is working!!
precious baby
Exactly! So glad you found the right combination! It makes a big big difference. The 14.18 is definitely worse than the chemo we thought. Praying for her every day!
Oh my that is the face of an angel…it brings tears to my eyes when I see her like this and have a feel of what she is going through..it is tears like I had when my 19 year old grand daughter went through before she was cancer free, but she never had to go through the aftermath that this baby is going through…we all are praying that all the pain she and her family is going through will be worth it in the end..the anger is part of it till all treatments are complete…she is one of GODS CHILDREN and so BLESSED that she has the family that she does….the day will come very soon that she want have to suffer the pain of treatment…GOD BLESS YOU ALL..U R VERY STRONG FAMILY…