Jillian update 9/26/13
Good morning troops, I have an update on Jillian. Dr. B came in for a visit with us this morning. Her labs still do not look good. Her WBC is coming up now finally but super slowly. We are hoping that she will be good to go for that stem cell harvest on Monday. Until then we sit here at the hospital and wait. She can’t be up walking the halls like she usually does; we did that the other day and her Vas Cath (the fat line they put in on Sunday for the dialysis) started to bleed giving us all quite a scare. So now my poor baby has to be confined to her bed. She is SUPER Neutropenic now anyway and prone to infection so it’s probably for the best that she is not out in the halls walking. But I know her; being not so active (I feel) is playing a big part in her recovering so slow. I hate this waiting game. In the mean time she needs another transfusion today. No wonder she feels bad and is not eating, her Hgb is very low. We also finally received the test results from her bone marrow aspirate. Doc took 2 samples (one from each hip) and one side came back clean – no cancer. But the other side still shows a c lump of cancer cells still there. Doc was hoping for both sides to come back clean. He is not overly concerned because as of now, she is still responding to chemo. With that tumor shrunk down to 24% and just a small cluster of NB cells left in her bone marrow, we are are on the right track. So we are still here at the hospital continuing our fight and no definite time frame on when we can come home. The good news did come from Make A Wish…They are planning our trip to Disney World in Florida for November 16-22 and we are going to stay at a very special place called Give The Kids The World. So we are very excited about this much needed vacation. For now, keep praying.
Much love CIC momma
‹ New events in November Update 9/28/13 ›
In our prayers!
In my prayers!
Praying for your little girl and family
Good vibes headed your way
Praying for you sweetie pie! You will be a miracle babygirl!
Enjoy your vacation..hope she feels better soon.
Come on Jillian, keep fighting your way back. You are in my prayers even tho I don’t know you. And mom, hang in there just know god is by your side. Prayers from Las Vegas
We continue to pray for good test results, and for your continued strength. As we know, it is all in Gods hands.
She’s in my prayers mama! So are you!! God bless!
Prayers to your family and your precious baby girl everyday!!!
Continued prayers for Jilli & the whole family… yay for the trip to look forward to 🙂 I hope these few days until Monday go by quickly for everyone.
Momma, your strength is amazing! (((HUG))) Keeping Jillian in my Prayers!
Things sound very positive! I can’t wait too see all the pics of Jilli at Disneyworld…THE HAPPIEST PLACE ON EARTH <3
In my prayers
You are all still in my prayers and will be always.Don’t give up,you’re not alone. <3
Thinking of you all.. stay strong♥
Prayers for your girl. She is a fighter and remember keep that faith going strong
Praying continually for your precious one. Did she like the tiara. A sweet young girl, pageant queen wanted her to have it. Her name is Jayleana.
Many prayers coming your way for Jillian and family! That is exciting news that she gets to go to the happiest place on earth! Love you all!
I am praying for Jillian and your family. God bless you!