Good morning Troops. Today is day 2 of Jillian’s scans. The C/T and 1st set of MIBG were done yesterday and today we did the second set of MIBG scans. I am pleased to already have the reaults back from the C/T.
Results: Stable with no new evidence for new disease!
Thank God! Now we wait for the results for the MIBG…. positive energy and prayers and good thoughts please!
Good morning troops! Today we welcome the first day of spring.
With spring always comes a sense of renewal…. changes. The weather changes, scenery changes and sometimes life changes. For this family, change seems to be an constant event. I have since gotten used to this creature we call “change”. Change is our new normal in this life. And after all, “Normal” is just a setting on the dryer.
Our warrior has scans coming up this week. As much as I am hopeful and confident that these scans will continue to read NED, the reality of this disease still sits in the back of my mind. I follow the pages of the other children fighting. I read the blogs and I read the comments. I have seen pictures of the ones that have relapsed and the ones that have gained their wings recently. I wish I had a more professional or eloquent way to say it but, this plain just f**king sucks! My thoughts and prayers, strength and energy go out to all of you still fighting this battle. And I hope to have positive news from Jillian’s scans soon.
Until then, we will enjoy the sunshine and the beautiful park days. And I also must wish a very happy birthday to Jillian’s Army COPA (chief of public affairs) and Jilli’s Aunt Paula… Salute!
Hey Jillian’s Army!
Hope you are all doing well, it’s been awhile and Jillian is doing great. She is fresh back from a weekend spent at Knott’s Berry Farm with General Dad and her sister, Sienna. While she was having fun, I saw on my Facebook timeline that St. Baldrick’s featured Jillian as their “honored kid” on Saturday. It was also on Twitter and Instagram, and probably other social media networks I know nothing about.
We have posted before about how great St. Baldrick’s is and how they fund research and have even given grants to the clinic that Jillian was treated at. March is their big fundraising push and this Saturday, March 4th, there will be a HUGE shaving event at McMullan’s Irish Pub. This is one of the top St. Baldrick’s events and there are 427 participants scheduled including a cool guy I know named KC Camis. This is KC’s first shave and he is doing awesome so far. If you’d like to donate to KC’s shave, you can do so by reading this post on the Jillian’s Army website and clicking here.
We are all so blessed that Jillian is doing well. St. Baldrick’s is a big reason why there is more hope for kids diagnosed with cancer than ever before. We appreciate them and are proud that they featured Jillian. We hope everyone at McMullan’s and the Bald By Design team have a great shave on Saturday. We give them all a Jillian’s Army SALUTE!!
– Aunt Paula
Before we get inundated with pink ribbons everywhere come October, let us take a moment to go gold now that it is September. I am seeing more support than ever before for our kids. But it’s still not enough. Awareness leads to funding and funding leads to new drugs; eventually leading to a cure. Spread the word…. September is childhood cancer awareness month. Are you aware???
I know it’s cliche to have mixed emotions about the first day of school. I walked Jillian and Sienna to their line up dots on the playground this morning. Sien found her friends as usual. And Jillian gripped my hand tightly as she waited for her new teacher to lead the line of students into the building. I had to let go as she walked into the building…and of course I couldn’t hold back the tears. I feel so silly crying. But the truth is, this is yet another moment that was almost taken from me… From her… From all of us. I don’t take any of these moments for granted. So have a Kleenex and an adult beverage….Here’s to the first day of school! Cheers!
As Jillian prepares to start first grade, can you all please keep this other Neuroblastoma warrior in your thoughts? Her name is Hazel. Amber explains the situation well:
“My heart hurts…. This is the biggest fear of mine. Hazel has been NED for two years. I am praying so hard for this family and this little girl…. Her scans are coming back suspicious. She may be relapsing. The same kind of cancer that Jillian had. Jilli has been NED for two years also. This is a repeating nightmare for me. Every Time I see another NB case relapse, I always think it could be Jillian next.
Please send love and prayers for this family.”
Here is a link to Hazel’s page if you’d like to show some love from Jillian’s Army:
Our Little Hazelnut
On Facebook: Hope For Hazel