Good morning troops. I am enjoying the cooler fall-like temps!!! And as summer slips away once again, I realized I never posted pics from the girls trip to the beach this year. We went with grandma & grandpa to the timeshare in CA. While we enjoyed the sun and the sand, we also went to Universal Studios.. HARRY POTTER WORLD!!! Yes, we are huge fans. Sienna belongs to the Gryffindor House, I – Ravenclaw.. Jillian… Any guesses??? She should have been placed in Slytherin, but chose Gryffindor like big sis. We had a blast! Enjoy the pics!
Before we get inundated with pink ribbons everywhere come October, let us take a moment to go gold now that it is September. I am seeing more support than ever before for our kids. But it’s still not enough. Awareness leads to funding and funding leads to new drugs; eventually leading to a cure. Spread the word…. September is childhood cancer awareness month. Are you aware???
I know it’s cliche to have mixed emotions about the first day of school. I walked Jillian and Sienna to their line up dots on the playground this morning. Sien found her friends as usual. And Jillian gripped my hand tightly as she waited for her new teacher to lead the line of students into the building. I had to let go as she walked into the building…and of course I couldn’t hold back the tears. I feel so silly crying. But the truth is, this is yet another moment that was almost taken from me… From her… From all of us. I don’t take any of these moments for granted. So have a Kleenex and an adult beverage….Here’s to the first day of school! Cheers!
Today the girls went to their school to see their classrooms and meet their new teachers. They are both excited to go back to school. Jillian is starting 1st grade… A milestone I thought would be taken from her and the family. I loved watching her explore her classroom and sit in all the different seats wondering which one she will get. She is excited that she is on the “big kids playground” this year. She is excited to make new “best friends” and she promised me she wouldn’t cry this year; wish I could promise the same. Her big sister Sienna starts 4th grade and is just happy to get to see her friends again and have new clothes. My precious Sienna was just a baby starting first grade when Jilli was diagnosed. I feel like I missed out on her first grade year.Just Another thing cancer took from our lives. But here we are moving forward, let the school year begin and new memories made.
As Jillian prepares to start first grade, can you all please keep this other Neuroblastoma warrior in your thoughts? Her name is Hazel. Amber explains the situation well:
“My heart hurts…. This is the biggest fear of mine. Hazel has been NED for two years. I am praying so hard for this family and this little girl…. Her scans are coming back suspicious. She may be relapsing. The same kind of cancer that Jillian had. Jilli has been NED for two years also. This is a repeating nightmare for me. Every Time I see another NB case relapse, I always think it could be Jillian next.
Please send love and prayers for this family.”
Here is a link to Hazel’s page if you’d like to show some love from Jillian’s Army:
Today is always a hard one for me… I stand in her doorway with my coffee watching her peacefully sleeping. 3 years ago today I almost lost her and had no idea. I was reluctant to even take her to the doctor over a low grade fever. But because it had persisted for over 4 days and she didn’t want her beloved chocolate milk, I decided I had to find out what was going on. Still in our pj’s, we went in first thing. We were referred to the e.r. for xrays – it’s probably just a blockage in her intestines. These pics are from that day. She was still in her pj’s. I remember how much she was sweating so I had to put her in a fresh top. She still had her silly going when we told her to do “mustache” but she wasn’t very happy. Doctors and nurses rushing around us whispering…throwing words around like cancer and tumor. I heard bits and pieces of conversations …we can’t get a vein, she’s dehydrated, she needs a blood transfusion, critical condition, admission to PICU….All the while you’re thinking “what the hell is happening, she was fine last week, or so I thought.” Then they tell me they are handing us over to the oncologist…a cancer doctor? How the fuck does a 3 year old get cancer? And then to get sent home to gather clothes and necessities because this will be our new home for who knows how long. Seeing her empty bed and her toys left untouched..not knowing if she will ever come home again. Her big sister, scared to death and confused. Her daddy, helpless, and unable to fix this.
Because relapse is such a high probability…this is the stuff that goes through my brain every year at this time. So far she has remained cancer free and I continue to pray for miracles. The further we get from the end of treatment, the better I feel. NED is fabulous but remission is just slightly beyond our reach.
I relive that week over and over… She is tough. We have all been made a little tougher. I stood strong because I had to…scarred from the battle that she should not have survived. But she did.
We all did.
All of you who fought along side us… You mean more to me that you will ever know! Thank you! SALUTE!CIC momma
Wishing you all a very happy father’s day! Hope all you dads out there had a great day!
Seems like it was just yesterday I dropped her off for the first day of kindergarten. Now the school year has come to an end and Jillian has promoted to the first grade. The school held a little ceremony for all the kindergartners. They sang songs and read poems; it was the cutest thing. It brought tears to my eyes. Jillian even got a reading award for knowing 100 sight words. I am so proud of her….
Our big first grader!!!!
Brave The Shave- NY peeps….
Check it out if you can!! I hate cancer and I still continue to support those who fight! I encourage you all to still fight! Until there’s a cure, the battle will continue. Who’s child will be next?
Just a quick update on our warrior Jillian’s daddy. The surgery on Tuesday went good and after spending one day in the hospital, they released him. He spent one night at his folks house but today he is home resting. Thank you for all your love and support once again!!!!