Jillian's Army

A site to provide updates on Jillian Moore's fight against Stage 4 Neuroblastoma Cancer

Moving forward with life after treatment

We had such an exciting and busy weekend. Friday was a fun filled birthday for Jillian’s aunt (and my talented, awesome, smart, witty Chief of Public Affairs) the one and only Paula. 

After a fun filled night of cake and karaoke, we had an amazing Saturday morning with the fantastic folks at Make A Wish of Southern Nevada. So many incredible businesses and people came out to Town Square to participate in the Walk For Wishes. General Dad’s employer Mercedes Benz of Henderson proudly lent out a convertible to be the pace car for the race. I got to ride on top with Jilli and Sienna as we led to participants through the route. I had a blast! 

Today was back to the busy, hectic life I live. She is supposed to start kindergarten in the fall. But there are some concerns about placing her in a public school with some of the things she has been through. She is showing some signs of immaturity in comparison to other kids her age. And with the public school system going full day kindergarten I am very stressed about how she will do in that environment. So I sought the help of a group called Child Find. Jillian has been through a number of assessments by their experts and today was the big day for us to get results.  They have determined that Jillian is eligible for and IEP (individualized education plan). This IEP will not only be good for the remainder of this school year (pre-k) but for kindergarten as well. Due to her medical condition (cancer treatment) and a hearing impairment she is protected by the ADA. General Dad and I are very happy by the outcome of this meeting. This will ensure that Jillian will not get lost in the crowd and she will get the specialized education she needs to get caught up to where she needs to be. I am just hoping that she will still be able to attend the same school as Sienna next year. We will know more in the next couple of days. 

Meanwhile Jillian has a cardiology appointment to check her heart and the all important surgery to remove her port on Friday. Send the positive energy and prayers for a good week and smooth surgery. Thank you all so much!

CIC momma



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